Posts in Lived experience
What Do You Do? Hope in Disability Policy Advocacy

As we approach the end of 2024, it seems an appropriate time to reflect on both the progress that has been made in disability equality, but also the things that we all do to protect ourselves and sustain our collective and individual advocacy efforts. In the Spring 2024 Edition of the Canberra Disability Review , Editor Rob Donnelly invited readers to do this, by responding to the question: What do you do that helps you to keep going, and maintain some measure of hope, when progress towards a fairer and more inclusive Australia is under heavy fire?  

Advocacy for Inclusion’s Head of Policy, Craig Wallace, and the Disability Leadership Institute’s CEO and Founder, Christina Ryan, shared their perspectives.  

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Unseen Impact: How Unpaid Caregiving Shapes Health and Lives

Care-giving can be a rich and complex experience that is both rewarding and challenging. Enrico Pfeifer (@EnricoPfeifer1), a PhD Candidate at the University College London, knows this first-hand. Today, he explores his doctoral research on the impact that care-giving can have on people’s health, and how we can support care-givers to stay healthy.

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We should be looking at what we can add to children’s lives instead of what we take away

This week Prime Minister Anthony Albanese announced the government's plan to introduce legislation to ban younger teens from social media. Today, Cadhla O’Sullivan (@CadhlaOSull) and Sharon Bessell (@BessellSharon) from the Children’s Policy Centre at ANU, highlight what other approaches are worth considering.

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Prioritizing Child Safety Over Gold Medals: Learning from Abuse Survivors in Sports

The whole world watches the Olympics and Paralympics, and national pride and achievement are front and centre. In today’s post, VicHealth postdoctoral research fellow Aurélie Pankowiak (@AureliePanko) of Victoria University (@iHealthSportVU)  argues more resources need to be  invested to ensure sport participants are safe from abuse. Learning from lived experience would allow for trauma-informed guidelines for both prevention and response and enable the creation of safer sport organisations.  

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Transitioning out of youth involvement roles: an interview with a Youth Involvement Officer and Senior Patient and Public Involvement and Engagement Lead

Within mental health research and service delivery, involvement of experts by experience has become increasingly common. The involvement of experts by experience allows for the design and delivery of research that is of higher quality and more rigorous. 

 

Transitioning out of youth-focussed lived experience groups is a matter that is not well understood and, for many reasons, complex. It can be difficult to transition from the role of being a young contributor to research into a professional in the Public and Patient Involvement space. Working in lived experience roles, either as ‘lived experience practitioners’, ‘peer support workers’, ‘PPI facilitators’ or ‘involvement officers’ can be complex and the relationships you hold in these spaces vary depending on your positioning within either the group or the organisation (Carr, 2019).

 

In this blog we explore the experience of Beckye, a former Youth Advisory Group (YAG) member for the University of Birmingham’s Institute for Mental Health as she begins the making this transition into an employee in a Youth Involvement Officer. The blog takes the form of responses to an with Beckye (Youth Involvement Officer) and Niyah (Senior Patient and Public Involvement and Engagement Lead). The interview offers early reflections that may be of use to organisations or individuals who may be supporting folk undertaking these transitions or in the process of negotiating the transition themselves.

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Alone Australian or collaboration for the nation we want?

Dr Millie Rooney, co-director of Australia Remade and long-time contributor here at Power to Persuade, has had some great ideas for new reality TV shows, following the success of ‘Alone Australia’. The question is - do we have contestants going it alone to survive, or a team effort to re-imagine a way for everyone to thrive?

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Implementing Trauma-Informed Care in the Proposed National Housing and Homelessness Plan

Exploring the pressing need for trauma-informed care in Australia's National Housing and Homelessness Plan, Research Fellow Chris Hartley sheds light on the deep links between trauma and homelessness while advocating for a unified, comprehensive approach to address the issue in line with global best practices.

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