Posts in Advocacy
The power to persuade: a tribute to Professor Gemma Carey

Professor Gemma Carey passed away in November 2024 after a long illness. Alongside her distinguished academic career, she co-founded Power to Persuade in 2011 and was its co-director until 2018. She built a collaborative, volunteer-run and genuinely co-produced enterprise with extensive reach and influence that continues to promote understanding and communication across four key groups of stakeholders involved in designing, implementing, studying and navigating social policy – government, academics, the community sector, and people whose lives are directly affected by it. In co-founding Power to Persuade, Gemma made a notable and lasting contribution to research and practice in social policy in Australia and internationally. Here, five people who were part of that journey – Kathy Landvogt, Susan Maury, Sue Olney, Sophie Yates and Tanya Corrie - reflect on her legacy.

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What Do You Do? Hope in Disability Policy Advocacy

As we approach the end of 2024, it seems an appropriate time to reflect on both the progress that has been made in disability equality, but also the things that we all do to protect ourselves and sustain our collective and individual advocacy efforts. In the Spring 2024 Edition of the Canberra Disability Review , Editor Rob Donnelly invited readers to do this, by responding to the question: What do you do that helps you to keep going, and maintain some measure of hope, when progress towards a fairer and more inclusive Australia is under heavy fire?  

Advocacy for Inclusion’s Head of Policy, Craig Wallace, and the Disability Leadership Institute’s CEO and Founder, Christina Ryan, shared their perspectives.  

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Home Choice: An Interview with Hannah Orban, Co-Author of The Grattan Institute Report “Better, Safer, More Sustainable. How to reform NDIS housing and support.”

In the Spring 2024 Edition of the Canberra Disability Review, Editor Rob Donnelly sat down with Hannah Orban to discuss the Grattan Institute’s (@GrattanInst) recent report “Better, Safer, More Sustainable. How To Reform NDIS Housing and support”. Today’s blog piece shares key parts of their interview, highlighting key issues with the current NDIS housing system and opportunities for improvement. You can read the original interview here.

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We should be looking at what we can add to children’s lives instead of what we take away

This week Prime Minister Anthony Albanese announced the government's plan to introduce legislation to ban younger teens from social media. Today, Cadhla O’Sullivan (@CadhlaOSull) and Sharon Bessell (@BessellSharon) from the Children’s Policy Centre at ANU, highlight what other approaches are worth considering.

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The Siren’s Call

In a departure from the usual style of our posts, we bring you a poem by Roger Chao on the lure of false promises in politics. Roger is a writer based in Victoria, Australia, who strives to use his writing to engage audiences to think critically about the role they can play in making a difference. He was inspired to write this poem by current international events, and politics here and overseas being shaped by forces whipping up and capitalising on fear of change.

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What can health professionals do about climate change?

By focussing on the health impacts of climate change, health professionals can play a vital role in framing the need for climate actions in a way that is more personally meaningful and less controversial for the public and policy makers. Today’s post by VicHealth postdoctoral research fellow Rongbin Xu (@RongbinXu) of Monash University (@MonashUni) explains how, and why this is important. This piece originally appeared in the Medical Journal of Australia’s Insight+ online magazine; you can read it in its original form here.

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A deliberate choice to keep people in poverty

In the lead up to Federal Budget, we featured a series of posts about the challenges of living on Jobseeker. Last week’s budget confirmed there would be no increase to the payment, meaning it remains below the poverty line. In today’s post, Maiy Azize, Deputy Director of ANGLICARE AUSTRALIA, outlines the long history of research and inquiry demonstrating the need to raise the rate, and calls for a backlash over the ‘deliberate choice to keep three million people in poverty’.

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Time for action: The need for children and young people in climate decision-making

Children and young people are essential voices and forces for change in public health, yet they are not included in climate discussions and decision-making. In today’s post, public health researchers from Deakin University’s Institute for Health Transformation (@IHT_Deakin) Grace Arnot (@GraceArnot), Dr Hannah Pitt (@HannahLPitt) and Dr Simone McCarthy (@SimoneNicoleM) highlight the important knowledge and experience that children and young people have, and call for their greater inclusion in climate decision-making and public health governance.

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Transitioning out of youth involvement roles: an interview with a Youth Involvement Officer and Senior Patient and Public Involvement and Engagement Lead

Within mental health research and service delivery, involvement of experts by experience has become increasingly common. The involvement of experts by experience allows for the design and delivery of research that is of higher quality and more rigorous. 

 

Transitioning out of youth-focussed lived experience groups is a matter that is not well understood and, for many reasons, complex. It can be difficult to transition from the role of being a young contributor to research into a professional in the Public and Patient Involvement space. Working in lived experience roles, either as ‘lived experience practitioners’, ‘peer support workers’, ‘PPI facilitators’ or ‘involvement officers’ can be complex and the relationships you hold in these spaces vary depending on your positioning within either the group or the organisation (Carr, 2019).

 

In this blog we explore the experience of Beckye, a former Youth Advisory Group (YAG) member for the University of Birmingham’s Institute for Mental Health as she begins the making this transition into an employee in a Youth Involvement Officer. The blog takes the form of responses to an with Beckye (Youth Involvement Officer) and Niyah (Senior Patient and Public Involvement and Engagement Lead). The interview offers early reflections that may be of use to organisations or individuals who may be supporting folk undertaking these transitions or in the process of negotiating the transition themselves.

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Sex education in Australia: Dismally out of touch with young people’s needs

Every young person has a right to evidence-based education to support their sexual health and wellbeing. But Australian schools continue to skirt around the S-E-X word, preach abstinence or throw some bananas and condoms in the break room and hope for the best. As Brianna Delahunty and Linnea Burton Smith from the ERA’s Young Women’s Advisory Group argue, Australians deserve inclusive, safe and respectful education that prepares them for the real world and real relationships.

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